Well, I'm off to the neurologist

[mackico]

So.

I recovered from Chronic Fatigue Syndrome, thanks, largely, to Archie.

Unfortunately, I had one remaining problem that may or may not have been related to the CFS, but which I have had for the last six years. On and off.

Attacks of sudden extreme dizziness that leave me pretty much incapacitated. They last 1-3 minutes, and can occur over and over and over again, every five or ten minutes or so, for anywhere up to 12 days. So, they're sort of debilitating, in that I can't walk unassissted when I have them, and I usually have to lean against a wall or get aid from someone else. Even getting up to go to the toilet can be a terrifying experience. As well as the dizziness I get tingling in my left shoulder and side of my neck.

Thankfully, between attacks I usually get at least a few months break, but sometimes I only get one month. One I had nearly three years though. That was a good three years.

Anyway, finally something is being done about it -- not to say that nothing was being done about it before. But we kept getting all these mis-diagnosis. I've been to see a list of different doctors and specialists that is so long I can't count them on my hands and toes. Two paediatritions, two cardiologists, three psychologists, two psychiatrists, physiotherapists... the list goes on.

But I've got my referral letter from my GP, and hopefully soon I'll get that appointment with a neurologist, who might finally know what's wrong with me!

[mackico]

Forgot to mention: that's the reason I've been absent for the last week! Did anyone miss me?

[wildmoor]

hope they find out what is causing them to stop them or at least reduce the severity of the attacks

[gloriab]

Originally Posted by wildmoor

hope they find out what is causing them to stop them or at least reduce the severity of the attacks

same here - hope all goes well with new doc
xx

Your symptoms sound neuro-related to me. Sadly you should have been referred earlier though. I hope you get a definitive diganosis and the right treatment. xx

Hop u get the help u need- I had a bad attack of vertigo a few months ago and was too scared to even get out of bed unaided! I really feel for u, travel sick tablets helped me- might be worth trying! Keep smiling x

[super D]

Good luck with everything, lets hope you improve very soon matey xxx

[Caryll]

Originally Posted by mackico

Forgot to mention: that's the reason I've been absent for the last week! Did anyone miss me?

Of course we missed you!

Hope they finally diagnose the problem properly for you & you can have a good quality of life again - good luck!

[Heather]

Good luck and hope you get your appointment soon- let us know how you get on xx

[Maddie]

I very rarely post here these days, your symptoms are incredibly similar to my OH's sister, she was diagnosed on monday this week.
Internet diagnosis is never a great idea, ive posted a link to wiki in case you are interested in what she has been told is the problem.

Ménière's disease - Wikipedia, the free encyclopedia

All the best.